Hair Today, Gone Tomorrow

Once I knew I’d have chemotherapy as part of my cancer treatment, I assumed I’d be bald for a while. My oncologist confirmed that fact at my first appointment: “You will lose your hair,” he noted. I just nodded. It would begin to thin within a week or two after the first treatment, he said, and likely shed in earnest after the second round.

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Precog at work

Before I even lost the first strand, the vision of my bald self that kept appearing in my mind’s eye was of one of the Precogs in the 2002 movie Minority Report, a sci-fi thriller set in Washington DC in 2054. The Precogs are three mutated humans with extra-sensory powers who spend most of the film floating in a tank, “previsualizing” crimes so that Tom Cruise’s character can arrest potential perpetrators before any heinous acts take place.

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Precog, rescued

The Precogs—specifically the character of Agatha Lively, played by Samantha Morton—are pale, near-bald, and wide-eyed, and for some reason, every time I tried to imagine myself without hair, that’s the image I saw.

I’m not sure why, as my one previous near-bald experience involved neither liquid immersion nor futuristic crime-fighting. I got a buzz cut in my mid-thirties when, at the university where I taught in Georgia, I played the lead role in Wit, Margaret Edson’s play about a stiff-lipped professor of British literature who faces ovarian cancer. Actors typically shave their heads for the role, and I was game. I made the transition gradually, having my bobbed hair cut short, then shorter, finally shaving it down to a buzz.

Weeks after -Wit-
Weeks after -Wit-

At that point I’m sorry to say I lost my nerve. Though I didn’t take it all the way to bare skin, that experience helped prepare me for the prospect of being bald once I became a real cancer patient who didn’t have a choice in the matter.

My approach was pragmatic. As the doctor had outlined it, the timeline of my treatments meant I could retain my regular haircut through my parents’ 50th anniversary party in mid-July. After that, a transition to a pixie cut would make the progressive loss less immediately obvious, and probably less traumatic. As I told an old friend at my folks’ gathering, I decided to relish, with intention, those last couple of weeks of having hair: I went a little brighter blonde than usual for fun, styled it deliberately each day, tinkered with a new curling wand I’d bought a month before. Once the hair was gone, my plan was to break out my vintage hats and scarf collection, and enjoy the inevitable simplification of my daily grooming routine with equal deliberateness.

The first significant thinning took place while Steve and I were visiting my parents for the anniversary party, a week after my first chemo. When I got up to go to the bathroom during the night, there in the mirror, by the light of the nightlight, I saw a distinct shadow on my left breast, a darkening of the skin where the cancer was located. Instinctively I understood the shadow to be a concentrating of the chemotherapy drugs in the mass. The first significant cluster of hair strands shed into my hands as I showered the next morning. So, the drugs were working. That was good.

The next week my Roanoke stylist Brandy gave me the anticipated pixie cut, accompanied by a welcome mimosa. The pixie got raves, but it only lasted about a week. I let my hair come out on its own until it got patchy, then invited my girlfriends over for a head-shaving porch party. I cried as the hair fell away, but we laughed together, too, and I felt surrounded by love and support as they rallied around and Steve kissed my head, which now matched his. When a few days later my thirteen-year-old nephew showed up shorn and shaven, having cut his long hair off to donate to Locks of Love, I was overwhelmed with gratitude.

My daily routine has shifted dramatically. No shampooing or conditioning, which I expected. No blow-dryer or flat-iron. But also: no leg or underarm or bikini shaving. The number of products I use regularly has been cut by at least a third. The change has made me wonder how many hours of my life, how much of my money, I’ve given over to hair all these years. I feel more confident when I’m coiffed and styled, when I wear makeup, but the investment is bigger than I’d ever reckoned. Now I’m left wondering: is all the time worth the trade-off?

For a while I did a double-take anytime I passed by a mirror. Wait, who’s that woman with the short hair/buzz cut/no hair? I wore something on my head most all the time at first, even sleeping with a blue wool beanie (sexy!) like Pa in his cap, T’was the Night Before Christmas-style. After the hot flashes set in (another side effect courtesy of chemo), I was almost glad not to have a hat of hair closing off the handy heat-vent that is my bare scalp.

Ulta flyer
Whose idea was this?

Compared to the prospect of permanent loss and alteration of my breasts, temporary hair loss is just that—temporary, and not so terrible. But there have been a few irksome moments. On our recent visit to Asheville, I spent a day at the Grove Park Inn Spa. As the attendant took me and another patron on a tour, she pointed out all the luxurious goodies we’d have access to in the showers: citrus shampoo and conditioner, body wash, shaving cream. I smiled ruefully. Well, yay for body wash. Just a few days ago I got an Ulta Beauty catalog-advertisement in the mail that made me shake my head. The cover advertised two events: a special promotion for October as Breast Cancer Awareness Month, and the month’s beauty focus, “The Gorgeous Hair Event,” tagline “Every Girl’s Way to Good Hair Days.” The first fourteen pages of the ad are devoted solely to hair care products and tools. Then follows a two-page spread on Breast Cancer Research Foundation initiatives–two support options are getting a shampoo/cut or pink hair extensions. Someone did not think that combo through fully, methinks.

Grove Park Spa Pool
Spa pool oasis

No one seems to mind the state of my head, really, though that day in the spa, I did get a few startled glances from other patrons when I first shed my headscarf. As I lay back in one of the pools, I imagine I really did resemble a Precog, ready to send and receive messages from the larger store of humanity. Across the room, a man with an artificial leg removed his prosthetic and slid into another pool; an elderly woman helped a frailer friend navigate stone tile steps. As I floated, listening to the underwater music, I gazed up through the skylight above me, watching the clouds shapeshift in the blue beyond. I had no predictions to make, for ill or good. I simply rested, my shiny head and healing body absorbing the truth of our shared imperfections: we’re all bald beneath our hair.

Kittycuddle

Everywhere’s a Metaphor

You know how when you buy a new car, suddenly that make and model starts showing up on every street you drive, every lot where you park? You’d never noticed it before you owned said car yourself, but suddenly it’s everywhere?

When you get diagnosed with cancer, the same thing happens. Instantly, it seems, every magazine you pick up has an ad for a new cancer drug, or a story of someone’s battle with cancer, or both. Every novel you read features a character with a mother or brother or friend who struggles with the disease (often used as shorthand for explaining the character’s current problems, especially if the mother’s/brother’s/friend’s cancer resulted in death). Watch any TV series long enough, and there will be a cancer mention, if not a full-on plot-line. Turn on NPR, and it comes up in that day’s interview.

Was I just not paying attention before now? Sometimes I wonder. I’ve lost count of the number of people I’ve met who reveal, once they hear I have breast cancer, that they are survivors: the technician who administered my pre-chemo EKG, a nurse practitioner I saw for an unrelated issue, my massage therapist. Friends have told me about mothers, aunts, sisters, co-workers who’ve traveled this path. It’s not that cancer had never entered my personal sphere: my sister-in-law is a six-year breast cancer survivor, and my husband, though his journey took place long before we met, is twenty-nine years cancer-free. But now I see it everywhere. Now it feels epidemic.

And with it come the metaphors.

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Professional hazard: when you’re a writerly type, and you’re trying to make sense of the weird detour your life has taken, the metaphors are dogged. You’re in the early stages of diagnosis and testing, and you drive to the beach. The weather is gorgeous for a few miles, then suddenly the gray gathers ahead, and your road leads straight into dark, threatening clouds. Rain pummels the car with such force you slow to a crawl. It lets up, a breather. You keep driving, round another bend, the storm crashes again. Just when it seems you’ll have to pull off the road to breathe without fear, the road bends westward, and the sky ahead shines clear and blue. You even catch a glimpse of a rainbow before it shimmers away. A bank of black clouds still hovers to the left. Will the rain follow you? Will the road turn directly into its path again?

You walk a mountain path through a nearby park. The first 100 yards of the trail are open, exposed to the blazing sun. It’s hot and uncomfortable until you reach the wooded portion of the trail that winds through the trees, where the dappled shade and a light breeze keeps the heat in check. It’s an out-and-back route, so you’ll trace those same 100 yards at the end of your walk. They weren’t fun at the beginning, and you know they’ll be even harder once you’re tired and spent and sweaty from the rest of your walk. But the only way home is back through.

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According to F. Scott Fitzgerald, “The test of a first-rate intelligence is the ability to hold two opposed ideas in mind at the same time and still retain the ability to function.” Chemotherapy, I think, is a first-rate test of a first-rate intelligence—and it’s a tough one, physically and psychologically. Embracing chemo means embracing toxic chemicals and nasty side effects that feel a lot like “harm,” even as you understand they’re doing “good” by helping you defeat the threat of the cancer.

Though the comparison feels more cliché than metaphor, chemo, for me, has been a roller coaster. Most breast cancer patients who have chemotherapy are on an every 2-week or 3-week cycle. As a two-weeker, I have one good week and one tough week. To concretize: imagine you’re going to be hit by a truck and catch the flu at the same time. For a week, you have intense body aches, nerve flare-ups, fatigue, nausea or other digestive issues, headaches, some fever. The worst passes after four to five days, followed by a couple days of lingering, less intense symptoms. You feel better, maybe almost normal, for a week. Then you willingly throw yourself in front of the truck again, because the truck is going to save your life.

I’ve been lucky, all things considered. My treatments have consisted of two sets of drugs, the first four a combination of Cytoxan and Adriamycin, and the second four rounds of Taxol. The first were the hardest, in part I think because of the ripple effect of adding drug-upon-drug to control side effects. In addition to the two chemo drugs in my drip, there was a steroid and two anti-nausea medications. I was also given a drug to boost my white-blood-cell count the day after chemo. Add Claritin to counter the bone pain brought on by the white-blood-cell booster, two at-home nausea meds should I need them, and laxative because all the anti-nausea meds cause constipation. I was already taking Ativan to sleep at night and Tylenol for discomfort. We’re talking twelve drugs going into a body that until a few weeks before hadn’t been processing anything more complicated than ibuprofen and the occasional Tums. Thankfully, I didn’t need all that was on offer—nausea wasn’t a major issue for me; I’ve only thrown up twice since I was eighteen. For what it’s worth, I did spend those eight weeks belching like a seventh grader. This phenomenon was not caught on camera.

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Taxol, for most, is more easily tolerated and requires fewer maintenance drugs, though I am in the 20% of patients (yay!) who experience fairly pronounced bone and muscle pain, and the cumulative fatigue that’s been promised is setting in. But on the whole I’ve done well. I’ve hydrated like crazy, brought yoga and massage on board to help, stayed in communication with my doctors so adjustments could be made, and (knock on wood) had no major allergic reactions. The worst event was a single scary blood pressure crash one evening after the first treatment.

The being yanked back and forth has been, perhaps, the toughest piece. The days I’m out and about, dressed, seeing friends, playing with hats: those are the good days. I seize them joyfully because I can (and because after a week parked on the sofa binge-watching The Mindy Project, I am restless and bored and eager to interface with actual people). It’s necessary to find and relish the joy, to resist succumbing to the undertow of I feel good now, but I know I’m going to feel bad again. The upside of knowing: I can plan around it. The downside: the pressure of trying to cram in everything I need and want to do, especially with increasing limitations. At first, I was fully functional during my “good” weeks. Then I started limiting myself to no more than 2 outside-the-house commitments or errands per day, then one, and I’m rapidly heading toward an every-other-day energy conservation model.

In truth, all of life moves this way, back and forth between the strong days and the hard ones. In a way, having some measure of predictability is a rare gift. In our everyday lives, none of us knows when such shifts will occur, when we will turn into the path of the storm, when the trail will grow hot and steep, when or if the rainbow might reappear.

My current shifts are dramatic and clearly delineated, but the biggest change is in my own awareness. These shifts have always been. They will always be. I can neither anticipate nor thwart them, and trying to do so just makes more wasted energy. The best, the only, place for me, for any of us to rest is here, now, in this intricate present.

porch oasis

 

Heads Up #1! — Hats on Parade

Beautiful, quirky, vintage hats make me happy, so I’ve titled this series “Heads Up!” as a reminder to keep my (currently bald) head up, to pay attention to the good in the world, and as an encouragement to myself and others facing a tough road that it’s possible to find the fun in even the most challenging circumstances.

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I’ve collected vintage hats since college. I can’t recall what sparked my initial interest, although I do remember scanning the newspaper for estate sales one summer looking for vintage hats and clothing (this was pre-Craigslist, -eBay, and -Etsy –how times change!). I discovered a treasure trove at a sale in my Georgia hometown that day and have been hooked ever since. I inherited hats from my maternal grandmother, my mom gifted some from her younger days, and others have come as gifts over the years. I also own some great vintage scarves and contemporary toppers that may find their way into this feature occasionally.

I think we lost the opportunity for some serious fashion fun when hats went out of vogue, and I’ve long thought they should have a comeback. I wore my vintage finds regularly for a while, and I still wear hats with pleasure, though these days I reach for contemporary styles more often than I do the oldies. Since choosing good headwear has now become an almost daily ritual, I thought this moment in my life was a good time to dig back into the hatboxes and have a little extra fun with my collection. Why should it stay hidden atop our closet shelves?

So, featured hat #1: A spring-green blocked fabric cloche with three wide ribbon stripes in orange, aqua, and cream. No label, found at a local antique store some years ago.

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Perfect for an outdoor summer party, or to add a little cheer to the chemo treatment room!

Heads up, friends!


Next-post preview: What do chickens and an MRI have in common? Revisit on Friday to find out…