Mountain Meditation: The Climb Down Begins

On Tuesday evening, June 13th, I went on a silent meditation hike with a few friends to commemorate the anniversary of my diagnosis. The hike was my friend Sarah’s idea; after reading my post “Climb Every Mountain,” she suggested that hiking down an actual mountain might be a good way to mark the end of the year-long uphill climb of diagnosis and treatment, and honor the path of ongoing recovery I’m on now and will be for a while: the (metaphorical) climb down.

Sarah and I planned to start at the top of Mill Mountain, and two friends would begin at the bottom, meet up with us on the trail, then turn back, and together we’d hike the rest of the way down. Two more planned to meet us at the bottom. I also carried several notes from friends and loved ones in my pocket, who’d shared words such as “hope,” “grace,” and “serenity,” and wishes for the coming year.

Sarah and I visited the overlook at the summit before we started down. I was almost moved to tears to see the sunset. Last year, Steve and I spent a few anxious days at the beach waiting to find out whether or not my cancer had metastasized. As I walked on the beach the first evening, the sun shone out from behind a dark cloud, its rays forming a kind of halo. In that moment, it felt like hope. As Sarah and I stood at the top of Mill Mountain, the sun once again shone its rays from behind the clouds. It felt like coming full circle.

Then Sarah noticed a smiling, shining sun painted on a rock that someone had left on the overlook sign. It was from the “Kindness Rocks” project. I snapped a picture and left it there to bring the next person who spotted it a smile.

At the trailhead I said, “Here’s to a new and different kind of year,” and then we started down in silence.

The metaphor is almost too easy; it practically writes itself. Much of the trail was rocky, though there were also smooth stretches, times when it was easier to look up and really take in the woods surrounding us. Some parts were wide and almost flat; others narrow and crossed by root-tangles. Once the trail jackknifed so hard to the left I almost missed the turn and became disoriented for a moment. One of my friends had to point the way. I walked in front, and there were times, especially when the trail grew narrow and steep, when I felt as I walking alone. But I knew I could just turn around and see people I loved were there, always behind me.

The downhill was relentless, and more than once I thought, “I didn’t think this trail was this long.” I also looked up at the slope we’d descended and thought, “That’s one big mountain. And I actually climbed it.” Metaphorically, vis à vis the physical Mill Mountain; literally, the mountain called Cancer.

At the start of our hike I mostly heard leaves rustling in the breeze, the soft thuds of my feet on the trail. In the middle I became aware of cars passing on the nearby road, the world outside the forest going about its business, unaware of our walk in progress. The closer we got to the bottom, the more birdsong I heard: owls hooting, wood thrushes whistling and trilling.

I stopped a few times to rest my cranky knees, to listen, to look. I saw a piece of glass on the trail and left it there because it wasn’t safe for me to pick it up and carry it; in my mind it represented worry, the thoughts and fears that can rob you of joy in the present. When I saw a golden glint, I bent down to investigate and found a tiny golden charm. I turned it over to see it read “create.” I laughed and put it in my pocket, thanking the Universe for the reminder and encouragement.

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At the bottom Sarah said some beautiful words: “In all the noise of living, remember the silence. And in the silence hear your soul’s voice. In all the rushing of living, remember the stillness. And in the stillness feel the pulse of life. In all the living of life, remember the dying. And know in the dying there is new life.” I had gone through a kind of death in the last year, she said, and now I was emerging, stepping into a new life, a new start.

There were hugs shared all around. I wanted to say something eloquent, too, express how much the love, kindness and support of my friends and family has meant, somehow capture all the ways my heart has broken and mended and split wide open in the hardest and most wonderful ways this year.

In the moment I squeaked out a teary “thank you.”

Two words that contain multitudes. Maybe, sometimes, “thank you” is enough. Sometimes, maybe, it is everything.

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Thank you to all who voted on a name change for the blog, and for the thoughtful suggestions that I consider a title without the word “cancer” in it at all. The clear preference (at 85%) of the poll choices was “Still Life, Beyond Cancer.” While I’m still on the mountain, as I will be for a bit, I think that title fits—but the comments have made me think about entertaining another name change in the not-so-distant future that reflects moving beyond even “beyond.” Thank you, dear readers and friends.

Tomorrow I’m scheduled to undergo my final major reconstructive surgery. I’ll be reporting soon on the new bionic boobs (an improvement, I hope, over the tissue expanders, also known as “bricks in your breasts”), and sharing more stories, resources, and fun hats. 

Climb Every Mountain

April was a month of celebration and struggle.

I hosted a tenth-year anniversary gathering for alumni tutors of the writing center I direct. I had a lovely visit with my parents that included planting herbs and taking a road-trip to the American Museum of the House Cat (quite possibly every cat lady’s dream…). I dropped off my leftover chemo-side-effects drugs at a safe-drug-disposal event—most cathartic! And I attended my 25th college reunion at Agnes Scott surrounded by smart, accomplished, inspiring women, an event especially meaningful because of all the moments in the last year I wasn’t sure I’d be able to be there.

I made a decision in April to embrace celebration as much as possible; my still-limited energy went to people and travel (and cat museums). That left little for writing. The danger (if one might call it that) of concluding my story on the blog with that triumphant dance down the hallway is that it suggests my journey through cancerland is complete. If I’m honest, my writing hiatus reveals my own deep-seated desire for that to be true.

But it’s not.

Being declared cancer-free is cause for celebration; being done with treatment is, well, tremendous. One small hiccup: being done with treatment is only the first piece of the process. Thus, with the celebration comes the struggle.

I’ve come to think it’s like hiking a mountain. Diagnosis and treatment, including chemotherapy, surgery, radiation—that’s the climb. The climb is hard, arduous, laborious. Many would say it’s the toughest part of the hike. There’s not much of an appreciable view along the trail; you keep your head down and push forward to the top. The summit, if you’re lucky, will be the ultimate reward: a cancer-free body, a beautiful view of a healthy, promising future.

It’s lovely, beyond lovely. But you’re still at the top of the mountain. And you can’t stay forever at the top of the mountain. You still have to make the climb back down.

Maybe only those with knees over forty can really relate, but trust me when I tell you: climbing down can be harder than climbing up. It puts pressure on different parts of your body. It requires adjustment to your sense of balance. In terms of perception, descending a steep slope is often scarier than ascending; fear of falling is heightened. And while, when you’re going up, your goal is clearly defined—you want to reach that summit—when heading down, the end-point is a bit more amorphous. You want to get off the mountain, eventually. You want to be done hiking and take a load off and relax. But when is the hike over? When you get to the trail-head? When you’re back at your campsite, or cabin, or house? After a warm shower and a thorough tick-check? And then there’s the fact that after making that climb and seeing that view, nothing will ever feel or look quite the same again.

Since completing radiation I have experienced ongoing pain and mobility issues related to something called “cording” in my left chest and arm (reaching, carrying, just getting dressed are problematic), along with the accompanying possibility/threat of lymphedema. I’ve had anxiety about recurrence and occasional flashbacks to particularly traumatic moments, events my doctors have likened to PTSD. “Chemo-brain” frequently robs me of words mid-sentence, and I often feel like I’m living in someone else’s body. I used to run 5Ks, lift weights, hike, bike, and paddle for fun; now it’s a challenge to walk 2 to 3 miles a few days a week and complete my physical therapy exercises daily.

I don’t share these facts for sympathy. I just want to paint a realistic picture of what recovery—even in the best-case-prognosis-scenario—looks like. Since treatment ended in early March, I’ve had 17 PT appointments, 5 therapeutic massages, 2 counseling appointments, 2 support group/Komen education meetings, 3 appointments with cancer-related specialists, and 3 additional doctor appointments, 2 of those to treat conditions likely brought on by my weakened immune system. That’s 33 recovery-related appointments in 72 days. I have 7 more appointments pending between now and the end of May.

My survivorship experience is not unusual. My physical therapist has repeatedly told me that it typically takes 18 to 24 months after the last major surgery to get back to something that feels like normal, and I won’t even hit that surgery milestone until mid-June.

It’s gonna be a long haul down a big mountain.

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Sharp Top Mountain, June 2016

Various (well-meaning) folk have described that mountain as “the new normal.” And while I know it’s a big hike, and that my mind and body are in some ways permanently altered, I feel the need to warn everyone I’m likely to punch the next person who suggests that this trail will never turn a corner. It may be the “now normal,” but long-term? In order to heal, I need to believe there will come a time when my social and creative obligations will outweigh the medical appointments on my calendar, when the daily discomfort will lessen enough that it’s not a constant reminder of the hell of so much of this past year.

I can’t predict the future, of course, and I’m working on accepting there’s more bushwhacking ahead than I’d like. But my hope, eventually, is to get back out there and climb a different mountain, a real one, with a name like Sharp Top or Buffalo or Bald Knob. I want to lift my face to the sun and drink in one of those views, feel gratitude in my heart and strength in my body. And know that my knees, however creaky, can handle the steep climb down.

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Buffalo Mountain, May 2015 — with eyes toward a return engagement!

Stay tuned for a chance to vote on a name change for the blog (don’t worry, this URL will still work, too!), more bionic boob stories, new books and resources, and—of course—more hats!

Autumn on the Parkway

img_9940Yesterday my husband Steve and I took a short drive along the Blue Ridge Parkway, hoping to see some fall colors. My energy and mobility are still pretty limited—for whatever reason, the Taxol has settled into my knees, leaving me to creak around arthritically—so a mountain drive seemed like a nice way to get out of the house and breathe in at least a little fresh air.

The sky was clear and blue, the weather a perfect balance of sunshine tempered by a crisp, occasionally brisk breeze.

The colors this year are pretty lackluster, however.img_9957

Just driving along, looking out over the long-range vistas provided by many of the Parkway’s overlooks, there wasn’t much color to see. The rolling mountains along either side of the ridge, while always lovely in their swells and dips and graceful silhouettes, didn’t offer any breathtaking vistas of brilliant hues. Most of the mountains and valleys remained green, or had simply faded to a kind of dusty, rusty brown, without any fanfare, without any autumnal spectacle. From that perspective, it would be easy to say there was no color at all.

img_9945But every so often, as we rounded a bend and the sun shone just right, a beam filtering through the trees lit up a few yellow poplar clustered a little ways back in the under-story. A low-growing shrub dappled the roadside bank with orange here and there, if you watched carefully. We had to pull over and walk a few feet up the Appalachian Trail to spot the scarlet of a single sassafras leaf, the mottled red and gold of a maple.

Some seasons of life, perhaps, are like that. The beauty is there, it’s just harder to see. You have to look a lot closer to find it. You have to let go of your ideas about the grandeur that should be, and cherish instead the smallest offerings.

Like a quiet afternoon with the man you love, a few moments on a windy ridge with the sun warm on your face, a sliver of splendor you can hold in your hand.

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Still Life, Still Celebrating: Special Anniversary Edition

njm_3015-001One year ago last Monday, Steve and I stood atop the Rooftop of the Center in the Square surrounded by family and friends and said “I do.” It was a cloudy, almost blustery day, but the rain held off, and we had a beautiful ceremony with our beloved mountains as backdrop, and a wonderful evening with dancing, cupcakes, heartfelt toasts that made us laugh and cry, and so much love and joy I thought I might burst.

I’ve often heard people say the first year of marriage is the hardest. There have been some adjustments to be made as Steve and I settled in to our new home (“Do you really want to hang that pink and yellow painting in the living room?” “Can you please close the hamper to keep the dirty clothes smell inside?”) Slowly we found our way to shared spaces that make us both smile, and we discovered new “together” routines that we love, honor and cherish.

My cancer diagnosis added some unexpected complications to that “first year is the hardest” admonition. I don’t think when we said our vows that either of us realized just how soon, and how dramatically, we’d be practicing the “in sickness and in health” portion of our pledge to one another.

imageBack when Steve and I celebrated our one-year dating anniversary, we had traveled to Seattle for a conference that same week. While touring around Pike Place Market, we hit upon the idea to honor our milestone by purchasing a piece of artwork jointly. We had already discerned that our tastes in art didn’t always converge–Steve preferred the representational, while I looked first for color, pattern, and mood–and though we weren’t yet engaged, we knew we were heading toward a future together. At the market we found a Scott Alberts woodcut of Mount Rainier with a cobalt blue sky. Steve liked the wood, I liked the color, and we both liked the mountain, which was recognizable but not straight realism. Sold!

The traditional first wedding anniversary gift is paper, so Steve had the wonderful idea that we should reprise our joint-artwork purchase: instead of each buying separate gifts, we could look for a watercolor or painting on paper that we both liked during our brief celebratory visit to Asheville, where we’d shared several special moments, including the day when Steve met my dad, and our honeymoon.

imageAs we wandered around some of the downtown shops and galleries, we kept our eyes open. Nothing much grabbed us until we saw a beautiful Jane Voorhees giclee print of a watercolor. The colors were rich and vibrant, the scene impressionistic rather than realistic, yet the painting clearly captured a Blue Ridge mountain landscape. When we picked it up and read its title, “these healing mountains,” it seemed meant for us.

Our first anniversary looked pretty different than what I would have described, if you’d asked me to project a vision of it back on our wedding day (especially the hairdo I’d be sporting…). Still, I was able to stroll through a city filled with good memories, enjoy delicious food, and let the beauty of the mountains sooth me, all with my husband, my love, right by my side.

It is enough.