On October 31st, 2016, then-President Barack Obama made a Presidential Proclamation declaring November “National Family Caregivers Month,” honoring “those who give of themselves to be there for their family, friends, and neighbors in challenging times.” At the time, I missed the announcement, still in a pretty pronounced post-chemo fog of pain and fatigue. And I was especially distracted that week: on November 1st, I was scheduled for a post-chemo mammogram and ultrasound, followed by an appointment with my oncologic surgeon to review the results of the scans, which would tell us whether or not chemo had been effective. November 1st was also hubby Steve’s birthday. When we’d met with the oncologic surgeon pre-chemo to talk scans, the news had been tough, so we’d held off scheduling any birthday festivities for the evening, just in case.
Though anxious, we were hopeful, and thankfully, the news was good. Still, I felt guilty, filling Steve’s birthday with yet another set of medical appointments. He’d been right by my side for most every single doctor’s visit or test since June, whether surgical consultation or CT scan or hours-long chemotherapy treatment. Going to the doctor isn’t much fun even when it’s your own body you’re trying to heal, and a sterile medical office with outdated magazines definitely does not scream “birthday party.”
In his proclamation, the former President lauded the “incredible generosity” of family caregivers, a description that itself seems almost not generous enough for the reality of spouses and partners of women with breast cancer. Along with accompanying me to appointments, Steve has driven me to offices and errands near and far, waited patiently, lent a second ear, helped me manage the information overload. He’s taken on the bulk of the household chores. He’s held me when I needed to cry; he makes jokes so I don’t forget to laugh. He’s encouraged me to take naps and go on walks, and he’s fetched my prescriptions and the occasional Coca-Cola Icee whenever I craved one. After surgery, when I was especially unsteady, I took over his bathroom because the shower there was easier to get in and out of. Meanwhile, he slept on a mattress on the bedroom floor for a month because I needed to keep the head of the bed elevated to prevent tangling my drains.
And speaking of drains, he gently, and diligently, stripped my JP drain tubes each morning and evening, without batting an eye, kneeling by the bedside, eye level with my bruised, scarred, and misshapen chest. Seeing my altered landscape must have been weird for him; I mean, it was, and is, weird for me. Yet Steve has never let on that he’s bothered by the changes in my body. (Okay, he admitted he was a little grossed out by the stringy chicken-fat-like gunk that occasionally showed up in my drains, but—so was I. Major yuck.)
I think it’s safe to say Steve has gone above and beyond. Seriously: this is a man who let me demonstrate the discomfort of my tissue expanders by allowing me to reach around his chest from behind, grab his pecs, and squeeze as hard as I could.
Maybe once you’ve made your vows and declared “for better or worse, in sickness and in health,” it’s just expected that you’ll be fully present for your partner in a medical crisis. But I don’t think a spouse’s ability to be a good caregiver is a given, and I don’t take my husband’s compassion or support for granted.
Obama opened his proclamation honoring family caregivers with the observation that “[o]ur nation was founded on the fundamental idea that we all do better when we look out for one another.” And so we do. So here’s to all the husbands and partners, who drive us to appointments and do all the dishes; who listen and lift up; who help us grow comfortable—physically and emotionally—with our changing bodies; who stand beside us through the tough times.
Steve recently marched by my side in our local Women’s March. He identifies as a socially liberal, fiscal conservative, while I am (I took a test) left of the Dalai Lama. He does support a majority of the March’s official platform, but we hold different enough views that when we discuss politics, we often find ourselves baffled and frustrated by the other’s perspective. Still, we listen, and we learn. We don’t expect we’ll come to consensus about every issue, and we don’t make consensus a precondition for civility or respect, and certainly not love. I knew, when we found each other, that what we’d found was rare. After traveling through cancerland together, I understand that truth even more deeply. And after watching the world in the past week, I understand, and value it, more deeply still.
Radiation begins on Monday. Steve still helps me into my coat every day. And until my range of motion improves enough for me to put it on by myself, I know he’ll be there, holding it open and sliding it over my shoulders, ensuring I stay warm and protected through the long winter’s chill.